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StepUp-SpeakOut.Org BlogSpot

Hello and welcome to the StepUp-SpeakOut.Org Blog Spot.

We will be using this blog for fast updates on news and information in the field of Secondary Lymphedema as a result of Breast Cancer.

We will be posting articles and information on new research and treatments, legislative and insurance information, and other pertinent information, and invite your comments.

Monday, March 30, 2009

American Lymphedema Framework Project

National StakeHolers Conference


On March 16, 2009 over 70 stakeholders in the area of lymphedema met in Glenview, Illinois for the American Lymphedema Framework Project Stakeholders Conference. Included in this group were:

  • Lymphedema patients & advocates
  • Lymphedema therapists
  • Industry representatives
  • Researchers and professors
  • Medical doctors
  • Nurses

    The meeting was conducted using an Open Space format and the preliminary findings are posted here. In the next few weeks, we will capture the nearly 50 posters that were created throughout the day and analyze the preliminary proceedings more completely. Once this has been completed, a narrative summary of the events at the conference will be created, emailed to participants, and available at

    Thank you to those who joined us at the National Stakeholders Conference. If you were not able to attend, you can still participate in the ALFP. Please sign up for email updates in the tab to the left to stay current with ALFP activities.

    ALFP Stakeholders Conference Preliminary Proceedings

    StepUp-SpeakOut said...

    From our BCO.Org lymphedema board, both Barbaraellen and OneBadBoob were in attendance.

    Judith Nudelman said...

    This is an important project, and is inclusive of providers and patients.
    Hoping for great success.