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StepUp-SpeakOut.Org BlogSpot

Hello and welcome to the StepUp-SpeakOut.Org Blog Spot.

We will be using this blog for fast updates on news and information in the field of Secondary Lymphedema as a result of Breast Cancer.

We will be posting articles and information on new research and treatments, legislative and insurance information, and other pertinent information, and invite your comments.

Tuesday, March 25, 2014

American Lymphedema Framework Project (ALFP) Stakeholders Meeting

American Lymphedema Framework Project (ALFP) Stakeholders Meeting

Dear colleagues,
We have exciting news to share with you! We have received Mizzou Advantage (internal University of Missouri funding for high-level conferences) to support ALFP stakeholder meetings in 2014!
We invite you to join us for the stakeholder meeting Friday, May 2, 2014, in Columbia, MO.
We plan Friday May 2 to be made up of scientific presentations (8:30 am — 12:00 pm) and small group consensus process (1—4 pm following a box lunch) and closing (4—5 pm) at Acuff Auditorium in the MU School of Medicine. This day is open to all stakeholders — patients, advocates, therapists, nurses, physicians, educators, industry, health policy makers, payers, students, public. We have capacity for 108 attendees in the venue we have secured.
Dr. Stan Rockson will be our keynote speaker May 2. We will have additional research presentations geared to the state of the science in our field: speakers include Dr. Joseph Feldman, Dr. Janice Cormier, Dr. Chi-Ren Shyu, Dr. Nicole Stout, Dr. Gui DeSouza, and Dr. Jane Armer.  
The May 2 timeframe is a very busy time in Columbia due to the annual statewide high school music competition being held at University of Missouri. (Past experience tells me there will be large musical instruments sighted trotting across campus on those dates!) Lodging is very tight on these dates.We have secured a limited block of rooms at a local hotel. If you wish to book your lodging in this block of rooms, please follow the instructions on the travel/lodging page to request a room in the American Lymphedema Framework Project block.
There is no charge for participation. However, we will each need to register for the Stakeholder Day to complete our participation numbers for food planning purposes. As mentioned, our capacity for May 2 is 108 seated.
Please register by April 15, 2014 to assure your place at this important meeting.
We do hope you will join us in Columbia May 2!! 
Thank you for your ongoing support! Please do not hesitate to contact us at smithka@missouri.edu or 573-884-3249 if you have questions or concerns!

Yours,
Jane
Jane M. Armer, PhD, RN, FAAN

Living with Lymphedema: A Special Educational Forum for Those Who Have Had Breast Cancer

Living with Lymphedema: A Special Educational Forum for Those Who Have Had Breast Cancer on Thursday, April 3 at 7 pm at Adelphi University in Garden City, New York, at Alumni House, 154 Cambridge Avenue.

By 
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Link to information

Monday, March 3, 2014

Sexual Health in Breast Cancer Survivorship

Please take a moment out to take this brief  Survey on sexual health after breast cancer and help the researchers in their important work in dealing with this issue.