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StepUp-SpeakOut.Org BlogSpot

Hello and welcome to the StepUp-SpeakOut.Org Blog Spot.

We will be using this blog for fast updates on news and information in the field of Secondary Lymphedema as a result of Breast Cancer.

We will be posting articles and information on new research and treatments, legislative and insurance information, and other pertinent information, and invite your comments.

Thursday, May 20, 2010

IS JUST A SLEEVE ENOUGH, OR DO YOU NEED HAND PROTECTION AS WELL?

The answer to that question will depend on several factors. If you are wearing garments to reduce your risk of developing lymphedema, you'll definitely want a gauntlet or glove to prevent any swelling from becoming trapped in your hand. If you already have lymphedema in your arm, and your hand is not yet involved, the decision to use hand protection or not is one you and your therapist should discuss. If you choose to wear the sleeve alone, be alert for signs of new swelling, tightness or heaviness in your hand, and move quickly to using hand compression (either garments or hand wrapping). This article by Dr. Andrea Cheville from the LympheDivas website explains your options in more detail.

Thursday, April 22, 2010

Please Participate in StepUp-SpeakOut.Org's Survey

Announcing a research survey by Dr. Mei Fu of New York University College of Nursing,
and StepUp-SpeakOut.org

Please participate!

We would value your response to the questions on our on-line survey: Breast Cancer and Lymphedema Symptom Experience Survey Regarding Breast Cancer and Lymphedema Symptom Experience

If you are a female 21 years of age or older and have been diagnosed with and treated surgically for breast cancer, you are invited to share your experience of breast cancer in this online study.
The purpose of this study is to examine the reliability and validity of the Breast Cancer and Lymphedema Symptom Experience Index, an instrument to evaluate breast cancer survivors' symptom experience. Your valuable input will help researchers better understand women's experiences of breast cancer, including symptoms, distress, and quality of life. Ultimately, the information obtained from the study will help to gain insights into the needs of women who have survived breast cancer so that more personalized care can be provided.

The New York University Institutional Review Board "IRB" (an ethical review board that monitors research involving human subjects) has approved this research study.

The study is brief and will take about 10-15 minutes of your time. You can skip any questions that you might feel uncomfortable in answering. Your participation is voluntary and anonymous. We will keep your responses confidential.

Your input is valuable. Please take the time to complete this survey. We appreciate your response!

Copyright 2010, College of Nursing New York University

We ask our therapist friends and health care providers to please suggest their patients take this survey.

Take this Survey!

Thank you for your participation. Your feedback will help further research on breast cancer and lymphedema symptoms in order to improve patient care.

Sincerely,
StepUp-SpeakOut.Org Group

Wednesday, February 24, 2010

Weight Lifting and LE: Clearing up misconceptions

Please be sure to read clarifications related to the study by Dr Kathryn Schmitz and colleagues, Weight Lifting in Women with Breast-Cancer-Related Lymphedema, which was published in the New England Journal of Medicine on August 13, 2009 “Weight Lifting and Lymphedema: Clearing up misconceptions” on the National Lymphedema Network website: http://lymphnet.org/lymphedemaFAQs/weightliftingLE.htm.

Friday, October 30, 2009

Our Fall, 2009, Newsletter is Out!

For those of you who do not subscribe to our newsletter, you can find our Fall, 2009 Newsletter here.

Our Newsletter Archives can be found here.

If you would like to subscribe to our newsletter, please go here to sign up.

Weightlifting and Lymphedema Study in New England Journal of Medicine

Please visit our page on Weightlifing and Lymphedema, Comments on Study published in New England Journal of Medicine and Questions and Answers with Dr. Kathryn Schmitz, Lead Author of study.